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The Detroit chapter of the Sickle Cell Disease Association of America invited Dr. Hines to speak at an event sponsored by Pfizer on November 30th, 2016.
This event was attending primarily by SCD patients and their families. The goal was to teach patients about clinical research in general, dispel myths about exploitation of minority populations in clinical research, and discuss the importance of clinical research in advancing the cause of sickle cell disease. Dr. Hines talked about how the basic science started by our team at Wayne State University is now reaching patients in SCD research trials through our work at Functional Fluidics. Many were moved to tears at that thought that people in both research and industry are working so hard to develop tools to help predict and prevent the awful painful events that plague their lives everyday. They viewed our work on predicting drug response as an opportunity to participate in clinical trials without feeling like “guide pigs” where drugs are tested on them with no evidence that they will benefit them personally. This was a moving event for all involved. This community of families and patients undergo tremendous stress and hardship while dealing with this chronic disease. We are grateful for the opportunity to play a part in helping to ease the suffering in this community.